Karen gets support from being able to get together with other young people with Parkinson's disease. Tom's charity work stemmed from his 'incurable optimism' but the results were spectacular. Even where two people seemed to have a lot in common, often one of them would get worse faster than the other. Helen, aged 40 finds support from a friend whose situation resembles hers but doesn't want to meet many other young people with PD. It took two and a half months. Some people found it helpful to see others to make comparisons with their own symptoms. We just go out and have a good time and talk. Have similar kinds of problems to encounter. It felt like the world had gone mad.
Online support communities have grown in recent years and we encourage you to to chat with others; Young-Onset Support Board; Young-Onset Parkinson's. Online Parkinson's Disease Support Groups Wellbeing, Newly Diagnosed, Caregivers, Friends & Family, Treatments, Creative Corner, and Social Chat.
For awhile, I thought Mr. Fox and I were the only Young Onsets out there.
I was wrong. I found a chat room for us Parkie's (an affectionate term.
Keith admits that part of his interest in other people with PD is to make comparisons with his own condition and to try predict how things will go for him.
But you all had a common feeling really, you experience the same emotions. Even where two people seemed to have a lot in common, often one of them would get worse faster than the other. And there is always something of interest there for everybody.
Their leaflets are very informative. Send to a friend Simply fill out this form and we'll send them an email.
Most people I've met there seem to be young onset. I don't. TONIGHT: Visit the Parkinson's Chat Room at 8 p.m.
ET to hear Paula from our Helpline talk about what NPF's Helpline has to offer you - like everything.
It helped them to gain confidence and reach a more positive attitude to their own condition and a greater understanding of other conditions causing long term illness. I had a little bit of that but there were people with large involuntary movements and with rigidity, stiffness, they froze. But a lot of that is the experiences of the people around the patch.
And I mentioned it to my husband, so we went along. We knew there was a support group locally. So recommend the support of the local branch.
Young parkinsons chat room
|Gina was working full time to repay her debts and managed to attend weekend meetings only occasionally.
Video: Young parkinsons chat room Ask the MD: Young-Onset Parkinson's Disease
I had a little bit of that but there were people with large involuntary movements and with rigidity, stiffness, they froze. I sort of was looking round the stall and chatting to the ladies on the stall and he said afterwards how helpful that had been just to be able to talk to somebody, and he said sometimes it does take time to sort out the medication.
Tom's charity work stemmed from his 'incurable optimism' but the results were spectacular. Because I think being diagnosed you lose a lot of confidence.